CLM Family Stories
The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed.
Has your family been through a lung malformation journey? Please consider sharing your story.
CPAM Stories
Hybrid Lesion Stories
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BPS Stories
09/ MM’s Story
MM was diagnosed prenatally with a small lung mass. She was born asymptomatic and later a CT scan confirmed a hybrid lesion with a feeder vessel. After a second opinion at CHOP, she had a successful resection at 3.5 years old, recovered well, and her 6-month post-op X-ray looked great with no further follow-up needed.
7/ Evan’s Story
Terrified after a prior scan scare, Evan’s parents heard “we need the doctor” and learned their baby had a lung malformation with a large feeder vessel. Although prenatal imaging later looked clear, a CT at two months revealed major blood diversion. Surgery at 2.5 months was hard, but Evan recovered and is thriving today.
3/ JJ’s story
Diagnosed in utero with a hybrid CPAM/BPS lesion, baby JJ faced a complicated start to life. His mother shares their powerful journey through uncertainty, a NICU stay, successful surgery, and the gratitude and wonder she feels watching her little boy thrive today.