Questions to ask your care team

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  • What is the starting CVR and/or measurements?

  • Where is the lung malformation located? Is more than one lobe affected?

  • What can you tell me about its appearance?

  • Is there any evidence of hydrops?

  • How often will I come in for ultrasounds?

  • How will this change if the lung malformation changes/grows bigger?

  • Do you recommend I get a fetal MRI?

  • Can I have a consultation with a surgeon?

  • Have you treated lung malformations before?

  • Who will be overseeing my case? Who is in charge of my care?

  • What is the standard course of management and treatment at this hospital for lung malformations?

  • What interventions, if any, will you offer if the lung malformation (the CVR number) gets bigger?

  • Can I receive all testing and treatment here or will I need to go to a specialist hospital?

  • How will this affect my birth plan?

  • Who will be present at the birth? NICU? Surgery?

  • Will my baby need to spend time in the NICU?

  • Can I tour the NICU before birth?

  • From prenatal imaging do you recommend surgery for my baby?

  • What are the pros and cons of surgery for my case?

  • When would surgery happen?

  • Can I pick the surgeon? How are surgeons allocated?

  • (If a teaching hospital) will residents or fellows be allowed in the operating room? If so, what will their role be?