Support and community

If you have questions about your baby’s diagnosis or want to connect with someone who has been there before, we offer support through text, email, and—coming soon—our friendly online support group.

TEXT: +1 (760) 650-2726 EMAIL: talk@cpamparents.org

This is peer support — not medical advice.

What happens when I reach out?

A parent volunteer will get back to you as soon as possible, normally within 24 hours. Some people just want a one-off message to answer a specific question, while others have been connected with parents in their local area or who have gone through a similar diagnosis for ongoing support, connection and friendship.

Here are some things our wonderful trained parent volunteers are really good at doing:

• make sense of your specific diagnosis (and all the acronyms)

• prepare for appointments and questions to ask your care team

• talk through common decision points (monitoring, timing, surgery, delivery planning)

• navigate NICU / hospital logistics and emotional survival

• talk through surgery, what to pack and what to expect

• cope with the anxiety of “waiting and watching”

• find language for updating family/friends and advocating for yourself