CLM Family Stories

The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed.

Has your family been through a lung malformation journey? Please consider sharing your story.

CPAM Stories

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CPAM, USA, Symptomatic, NICU

6/ Lexie’s story

CPAM, USA, Symptomatic, NICU

CPAM, USA, Asymptomatic

4/ Kayla’s story

CPAM, USA, Asymptomatic

2/ Lena’s story

CPAM, USA, Asymptomatic

Hybrid Lesion Stories

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USA, Hybrid Lesion, Asymptomatic, Surgery after 1 year old

09/ MM’s Story

USA, Hybrid Lesion, Asymptomatic, Surgery after 1 year old

Asymptomatic, Hybrid Lesion, USA

8/ Lorelai’s Surgery Story

Asymptomatic, Hybrid Lesion, USA

USA, Asymptomatic, Hybrid Lesion

7/ Evan’s Story

USA, Asymptomatic, Hybrid Lesion

Hybrid Lesion, USA, Symptomatic, NICU

3/ JJ’s story

Hybrid Lesion, USA, Symptomatic, NICU

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BPS Stories

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BPS, NICU, USA, Symptomatic

1/ Billy’s story

BPS, NICU, USA, Symptomatic

Emily Lake 2/25/26 Emily Lake 2/25/26

09/ MM’s Story

MM was diagnosed prenatally with a small lung mass. She was born asymptomatic and later a CT scan confirmed a hybrid lesion with a feeder vessel. After a second opinion at CHOP, she had a successful resection at 3.5 years old, recovered well, and her 6-month post-op X-ray looked great with no further follow-up needed.