Congenital Lung Malformation Family Stories
The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed.
Has your family been through a lung malformation journey? Please consider sharing your story.
BROWSE STORIES BY DIAGNOSIS
BY EXPERIENCE
BY COUNTRY
09/ MM’s Story
MM was diagnosed prenatally with a small lung mass. She was born asymptomatic and later a CT scan confirmed a hybrid lesion with a feeder vessel. After a second opinion at CHOP, she had a successful resection at 3.5 years old, recovered well, and her 6-month post-op X-ray looked great with no further follow-up needed.