Frequently Asked Questions
How is your information medically reviewed?
Every medical education resource we publish goes through a clinician review process before it’s marked as “clinician-reviewed.” A pediatric specialist (or relevant clinician) checks for medical accuracy, clarity, and whether anything could be misread or misleading by a stressed family.
Who reviews your materials?
We work with clinicians who have direct experience caring for babies and children with congenital lung malformations (CLMs). Reviewers may include pediatric surgeons and other specialists involved in CLM care. We list our clinical reviewers/advisors publicly, where appropriate, and you can always see who edited or reviewed a specific article.
What does “clinician-reviewed” mean — and what doesn’t it mean?
It means a qualified clinician has reviewed that specific content for accuracy and safety.
It does not mean the content is a substitute for medical care, a diagnosis, or a treatment plan for your child. CLMs vary widely, and clinical decisions should always be made with your own care team.
Do you use medical references or guidelines?
Yes — we use reputable sources (clinical papers, hospital resources, and consensus guidance where available) and then translate them into plain language. We aim to keep the science accurate and readable, because parents shouldn’t need a medical degree to understand their baby’s diagnosis.
How can clinicians contribute or correct something?
We genuinely want that. Clinicians can:
suggest edits,
review a draft resource,
or share preferred phrasing for sensitive topics.
You can contact us at info@cpamparents.org (general) or talk@cpamparents.org (family support referrals).
How do you protect privacy when families reach out?
We only collect what we need to respond and provide support. Peer support conversations are kept confidential within CPAM Parents support operations, except if there’s a safety concern. We do not share identifiable information publicly without explicit permission.