We are a small, parent-led, grassroots organization dedicated to providing education and support for parents navigating congenital lung malformations, while raising awareness of this disease and supporting research in the field.
Emily Lake, PhD
Founder and Chief Executive
Emily leads CPAM Parents day to day and directs the Talk to a Parent program. She founded the organization in late 2025 after her son was diagnosed prenatally with a bronchopulmonary sequestration (BPS). Emily holds a PhD in Linguistics from Stanford University, where her research focused on young children’s language. She also has an extensive background in running and facilitating peer support groups for a grief and bereavement organization, an experience that directly shapes how she thinks about community, connection, and what families in crisis actually need. Originally from the UK, she lives in California with her husband, their two boys, and two cats.
You can email Emily at: emily@cpamparents.org
Heather Raney
Privacy & Compliance Lead
In 2024, Heather’s daughter was diagnosed with CPAM in both lungs. With a professional background in abuse prevention, security, and extensive nonprofit leadership, Heather is committed to turning her own family’s journey into a source of guidance and strength for others. She lives in California with her husband, their healthy daughter, three cats, and one dog.
You can email Heather at: heather@cpamparents.org
Sonja Swanson
Founding Parent Volunteer
In 2024, Sonja’s daughter was diagnosed with CPAM, which was reclassified as congenital bronchial atresia (CBA) after a successful surgery. As a journalist, she’s interested in how parents can use thoughtful questions, research, and peer support to make more informed decisions. Sonja lives in California with her husband, daughter, dog, and cat.