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Family Stories
The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed. Has your family been through a lung malformation journey? Please consider sharing your story.
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1/ Robbie’s story
A rocky pregnancy with an extralobar BPS (bronchopulmonary sequestration) and an unexpected stay in the NICU