We are a small, parent-led, grassroots organization dedicated to providing education and support for parents navigating congenital lung malformations, while raising awareness of this disease and supporting research in the field.
Emily Lake, PhD
Founder and Chief Executive
Emily leads CPAM Parents day to day and directs the Talk to a Parent program. She founded the organization in late 2025, inspired by her family’s experience after her son was diagnosed prenatally with a bronchopulmonary sequestration (BPS). Emily holds a PhD from Stanford University, and her background in social science research and work with children has shaped her commitment to making research clear and accessible to the communities it represents. She lives in California with her husband, their two boys, and two cats.
You can email Emily at: emily@cpamparents.org
Heather Raney
Privacy & Compliance Lead
In 2024, Heather’s daughter was diagnosed with CPAM in both lungs. With a professional background in abuse prevention, security, and extensive nonprofit leadership, Heather is committed to turning her own family’s journey into a source of guidance and strength for others. She lives in California with her husband, their healthy daughter, three cats, and one dog.
You can email Heather at: heather@cpamparents.org
Sonja Swanson
Founding Parent Volunteer
In 2024, Sonja’s daughter was diagnosed with CPAM, which was reclassified as congenital bronchial atresia (CBA) after a successful surgery. As a journalist, she’s interested in how parents can use thoughtful questions, research, and peer support to make more informed decisions. Sonja lives in California with her husband, daughter, dog, and cat.