Home > Education > Parent Guides

Parent Guides

Our Parent Guides are designed to help families understand congenital lung malformations step by step. Each guide explains medical information in clear, simple language, with input from parents and medical experts. Whether you’re just starting with a diagnosis or preparing for surgery, these resources are here to give you clarity, confidence, and support along the way. Our current resources cover CPAM (congenital pulmonary airway malformation) and BPS (bronchopulmonary sequestration), and we’re actively expanding to include information on BA (bronchial atresia) and CLE (congenital lobar emphysema).

Line drawing of a congenital pulmonary airway malformation (CPAM) in the lower left lung lobe.

CPAM

congenital pulmonary lung malformation

CPAM Parent Guide
Line drawing of a bronchopulmonary sequestration (BPS) in the lower left lung lobe.

BPS

bronchopulmonary sequestration

BPS Parent Guide
Line drawing of congenital lobar emphysema (CLE) in the upper left lung lobe.

CLE (coming soon)

congenital lobar emphysema