Home > Family Stories
Family Stories
The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed. Has your family been through a lung malformation journey? Please consider sharing your story.
Filter by
6/ Lexie’s story
At 36 weeks, Lexie was diagnosed with a large macrocystic CPAM that had been missed earlier in pregnancy. After struggling to get clear answers locally, her parents transferred care to the Children’s Hospital of Philadelphia (CHOP), where an experienced surgical team delivered and operated on Lexie immediately after birth. Despite the severity of her lung lesion, she recovered quickly and today—at 4.5 years old—is thriving and completely healthy.
5/ Macie’s story
At their 20-week anatomy scan, Macie’s parents learned that their baby girl had a rare lung lesion. After close monitoring in Alabama, they traveled to the Children’s Hospital of Philadelphia (CHOP) when Macie was one month old, where she underwent a successful right lower lobectomy. The mass was diagnosed as bronchial atresia. Today, at three years old, Macie is healthy, thriving, and full of life.
4/ Kayla’s story
After two miscarriages, a mother's third pregnancy brought both hope and fear when her daughter was diagnosed with CCAM (now called CPAM) at 20 weeks. Born early at 35 weeks, Kayla was asymptomatic and underwent a successful surgery at three months old. Now a happy healthy eleven year old, Kayla is thriving with no long-term effects.