CLM Family Stories

The stories here are real personal experiences generously shared by parents in our community. Please honor their trust by reading with compassion, remembering that each family’s journey is unique. To protect privacy, some names have been changed.

Has your family been through a lung malformation journey? Please consider sharing your story.

CPAM Stories

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Ireland, NICU, CPAM

10/ Cillian’s Story

Ireland, NICU, CPAM

CPAM, USA, Symptomatic, NICU

6/ Lexie’s story

CPAM, USA, Symptomatic, NICU

CPAM, USA, Asymptomatic

4/ Kayla’s story

CPAM, USA, Asymptomatic

2/ Lena’s story

CPAM, USA, Asymptomatic

Hybrid Lesion Stories

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USA, Hybrid Lesion, Asymptomatic, Surgery after 1 year old

09/ MM’s Story

USA, Hybrid Lesion, Asymptomatic, Surgery after 1 year old

Asymptomatic, Hybrid Lesion, USA

8/ Lorelai’s Surgery Story

Asymptomatic, Hybrid Lesion, USA

USA, Asymptomatic, Hybrid Lesion

7/ Evan’s Story

USA, Asymptomatic, Hybrid Lesion

Hybrid Lesion, USA, Symptomatic, NICU

3/ JJ’s story

Hybrid Lesion, USA, Symptomatic, NICU

BPS Stories

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BPS, NICU, USA, Symptomatic

1/ Billy’s story

BPS, NICU, USA, Symptomatic

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Emily Lake 3/4/26 Emily Lake 3/4/26

10/ Cillian’s Story

Cillian’s family navigated his prenatal CCAM diagnosis (now called CPAM) alongside his father’s battle with cancer. Juggling a high-risk pregnancy, chemotherapy appointments, and early surgery at just two weeks old, the family made it through and Cillian is now a happy, healthy, active boy. Cillian’s mother shares their story of love, hope, and resilience.