January updates!
Happy New Year!
Hi friends —
Happy January! If you’re new to CPAM Parents, welcome—and if you’ve been here since the beginning, thank you so much for being part of this from the start. We’ve got an exciting year ahead.
A quick milestone
Since launching in early October, CPAM Parents has reached 2,000+ unique visitors. We are so excited by the response so far to our small, parent-led, grassroots project. It means families are finding calmer, clearer, up-to-date information when they need it most.
What’s new (and improved)
We’ve redesigned the website and expanded what’s on it. There’s more guides, tools, and educational materials created specifically for newly diagnosed families.
Talk to a Parent is now open
We’ve also launched our Talk to a Parent line. You can text or email, and a trained parent volunteer will get back to you as soon as possible. We now have volunteers in both the US and UK who are ready to support families going through a CLM diagnosis.
This is especially helpful if you’re:
newly diagnosed and need to talk to someone who’s been there before
trying to get a quick question answered or a term clarified
as a first step toward being connected with 1-on-1 ongoing support (including for high-risk or symptomatic cases)
Talk to a Parent
January = Myths vs Facts month
All month we’re posting short myth-busters and building out the Myths vs Facts page. We want to cut through the scary, outdated, worst-case stuff that floats around online and replace it with evidence-informed clarity.
If there’s a myth you’ve heard (or one you can’t stop thinking about), hit reply and tell us—we’ll cover it!
Check out Myths vs Facts
Help us grow what works
Two ways you can contribute right now:
CLM experts: collaborate with us
We’re excited to keep expanding our community of trusted CLM experts. If you’re a clinician, researcher, ultrasound tech, radiologist, NICU nurse, or health professional (or you know one) and you’d like to contribute, please reach out.Family stories (these are huge!)
Family stories are consistently one of the most-read parts of the site (right alongside the parent guides). They’re so popular because they give newly diagnosed families perspective, reality, and hope.
If you’d be willing to share your experience, you will genuinely help someone feel less alone in the middle of a new diagnosis.
Read or share a family story
Best wishes for a healthy and happy 2026,
Emily Lake, PhD
CPAM Parents Founder