New Diagnosis? Start Here
“If you’re just getting this diagnosis, take a deep breath. I know it feels like your world just collapsed, but the majority of these babies do amazingly well. Medical science has come such a long way, and there’s so much reason to hope.”
You’re not alone — and you’ve come to the right place.
Hearing that your baby has a congenital lung malformation (CLM) such as CPAM or BPS can be a stressful, isolating, and overwhelming experience. Most parents have never heard these terms before, and it’s normal to feel confused, anxious, or scared.
At CPAM Parents, we’re here to help you make sense of what’s happening and find the support you need, right from the start.
1. Understand the diagnosis
We’ve created clear, compassionate, parent-friendly guides reviewed by medical experts to help you understand what your baby’s diagnosis means and what to expect.
CPAM (Congenital Pulmonary Airway Malformation) parent guide
BPS (Bronchopulmonary Sequestration) parent guide
You’ll also find an easy-to-read Glossary to help you understand medical terms your doctors may use.
2. Connect with another parent
Often the best support comes from someone who has been there before. Through our Parent Connections Program, we can match you with another parent who’s already navigated a similar diagnosis. These amazing volunteers provide a compassionate space where you can share what you’re going through with someone who actually “gets it”.
Learn more about Parent Connections
3. Read family stories
It can be really helpful to read other people’s stories to understand the full spectrum of lung malformation journeys that families go through, and to feel less alone as you navigate your own.
4. Take care of yourself
From checklists for appointments, to questions for your care team and pregnancy affirmations, our resources are created by parents for parents to make life a little easier as you navigate this diagnosis. Remember to look after yourself along the way. Eat, sleep, breathe, and ask for help when you need it. Take breaks from reading medical information, go for a walk, or talk things through with someone you trust.
5. Stay connected
We’re continually adding new guides, stories, and resources. You can sign up to stay in touch with us to get thoughtful updates and our monthly newsletter.
You’re not alone in this.
From one parent to another: we know how heavy this moment feels. We’re here to walk beside you.
Learn about congenital lung malformations
Connect with a parent
Read family stories