We’re a parent-led grassroots project providing education, support, and connection for families navigating congenital lung malformations — while building awareness and supporting research.
How we support parents:
Education
We provide clear, accurate and up-to-date materials, guides and tools on congenital lung malformations, always carefully reviewed and edited by a medical expert.
Connection
Text or email with a trained parent volunteer who has been through this diagnosis before. If you want ongoing support, we also offer longer term 1-on-1 connections.
Family stories
We share real life stories from families who have been through a congenital lung malformation diagnosis and come out the other side.
Welcome
If you’ve just heard your baby has a congenital lung malformation like CPAM or BPS, take a deep breath. You’re in the right place.
Here are the three things most families need first.
What is a CLM?
A 2-minute, plain-language overview of congenital lung malformations. What they are, what they aren’t, and what usually happens next
Understanding the diagnosis
What different terms mean, how lung malformations differ, and what to expect during a CLM pregnancy.
Talk to a parent
Have a question? Need to vent to someone who gets it? Text or email our parent line and we’ll get back to you as soon as we can.
1 in 2,500
the estimated number of babies born with a CLM
90%
of babies born with a CLM will be asymptomatic at birth
70%
of CLMs are currently diagnosed prenatally
Latest posts
Latest family stories
Talk to a parent
Sometimes you don’t need more links—you need a human who gets it.
Text +1 (760) 650-2726 or email talk@cpamparents.org to chat with a parent volunteer who has navigated this diagnosis before.
We’ll respond as soon as possible, normally within 24 hours
Peer support and practical guidance—this is not medical advice