We’re a parent-led grassroots project providing education, support, and connection for families navigating congenital lung malformations — while building awareness and supporting research.

New diagnosis? Start here
Talk to a parent who gets it

How we support parents:

Outline drawing of a graduation cap with a tassel and an apple on a white background with pastel colored splatters.

Education

We provide clear, accurate and up-to-date materials, guides and tools on congenital lung malformations, always carefully reviewed and edited by a medical expert.

About CLMs
Line drawing of two women shaking hands, smiling, with yellow and orange paint splatters in the background.

Connection

Text or email with a trained parent volunteer who has been through this diagnosis before. If you want ongoing support, we also offer longer term 1-on-1 connections.

Talk to a parent
Line drawing of a family of three in a framed photograph with a small branch with leaves at the bottom right corner, surrounded by colorful paint splatters.

Family stories

We share real life stories from families who have been through a congenital lung malformation diagnosis and come out the other side.

Read family stories

Welcome

If you’ve just heard your baby has a congenital lung malformation like CPAM or BPS, take a deep breath. You’re in the right place.

Here are the three things most families need first.

What is a CLM?

A 2-minute, plain-language overview of congenital lung malformations. What they are, what they aren’t, and what usually happens next

Read the overview

Understanding the diagnosis

What different terms mean, how lung malformations differ, and what to expect during a CLM pregnancy.

Read about diagnoses

Talk to a parent

Have a question? Need to vent to someone who gets it? Text or email our parent line and we’ll get back to you as soon as we can.

Talk to a parent

1 in 2,500

the estimated number of babies born with a CLM

90%

of babies born with a CLM will be asymptomatic at birth

70%

of CLMs are currently diagnosed prenatally

Latest posts

Latest family stories

Talk to a parent

Sometimes you don’t need more links—you need a human who gets it.

Text ‪+1 (760) 650-2726 ‬or email talk@cpamparents.org to chat with a parent volunteer who has navigated this diagnosis before.

  • We’ll respond as soon as possible, normally within 24 hours

  • Peer support and practical guidance—this is not medical advice

For clinicians

CPAM Parents provides clinician-reviewed, plain-language education and trained parent-to-parent peer support for families navigating congenital lung malformations. Our programs support parental mental health and coping both prenatally and postnatally, and we also build public awareness and support research efforts in the CLM space.

Get in touch