https://cpamparents.org/family-stories-1 daily 0.75 2026-04-20 https://cpamparents.org/family-stories-1/11-aaliyahs-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/1773948422460-2AKQZHK6L66O7CMZ2OCR/Untitled-51.png Family Stories - 11/ Aaliyah’s Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://cpamparents.org/family-stories-1/10-cillians-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/2e6ec0c1-1856-41ea-855b-5b250a1e70f5/ChatGPT+Image+Sep+10%2C+2025+at+10_51_19+AM.png Family Stories - 10/ Cillian’s Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://cpamparents.org/family-stories-1/09-mms-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/41acd369-81d3-494d-b5f5-0be139e7f82a/Untitled-96.png Family Stories - 09/ MM’s Story https://cpamparents.org/family-stories-1/loreleis-surgery-story monthly 0.5 2026-02-24 https://cpamparents.org/family-stories-1/7-evans-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/a9db88ae-5b17-4ff7-aea3-ff3d75ce3ced/Untitled-77.png Family Stories - 7/ Evan’s Story https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/d6d62008-8a30-4b50-9c36-e32bf5ad58c0/image6.jpeg Family Stories - 7/ Evan’s Story - Evan today–happy, healthy, active! https://cpamparents.org/family-stories-1/6-lexies-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/da64605f-f921-4e4e-9cd3-8f4da138fa2c/Untitled-56.png Family Stories - 6/ Lexie’s story https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/cf34e6ed-edd5-4ce3-a8d7-4ba9d29dac64/IMG_2568.jpeg Family Stories - 6/ Lexie’s story Lexie and her mom in the NICU. https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/460060e6-86db-4462-870d-164f5d0f301d/IMG_4182.jpeg Family Stories - 6/ Lexie’s story Lexie recovering after surgery. https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/ce5f3011-a868-4ddb-b3ef-3b97262b1213/image0.jpeg Family Stories - 6/ Lexie’s story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://cpamparents.org/family-stories-1/macies-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/7d3f6512-b552-4666-aaa9-d970f2fe61ce/Untitled-57.png Family Stories - 5/ Macie’s story https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/b2748191-0956-447b-9d14-3e9eecaa2b29/IMG_9235.jpeg Family Stories - 5/ Macie’s story https://cpamparents.org/family-stories-1/4-kaylas-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/296c530d-2725-4e13-a991-a23c07bf7eaf/Untitled-56.png Family Stories - 4/ Kayla’s story https://cpamparents.org/family-stories-1/3-jjs-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/1472ea43-1a78-40e6-bed2-c4f0d34807f1/image4.jpg Family Stories - 3/ JJ’s story JJ is a pseudonym https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/bd71e7ee-247e-41c9-bbe3-e26df96d071e/image0.jpeg Family Stories - 3/ JJ’s story JJ recovering after surgery. https://cpamparents.org/family-stories-1/2-lenas-story monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/27aa608d-3df1-4bca-8265-1aaa9a06a559/Untitled-56.png Family Stories - 2/ Lena’s story https://cpamparents.org/family-stories-1/robbie monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/b54611dd-c28d-4519-ab43-abdba822c106/billys-story.png Family Stories - 1/ Billy’s story https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/a84fc6f6-cc83-4e02-a8cf-fd7f3ebdde73/Screenshot+2025-09-17+at+8.50.00%E2%80%AFAM.png Family Stories - 1/ Billy’s story Billy in the NICU at 6 days old. https://cpamparents.org/family-stories-1/category/USA monthly 0.5 https://cpamparents.org/family-stories-1/category/Hydrops monthly 0.5 https://cpamparents.org/family-stories-1/category/CBA monthly 0.5 https://cpamparents.org/family-stories-1/category/BPS monthly 0.5 https://cpamparents.org/family-stories-1/category/CPAM monthly 0.5 https://cpamparents.org/family-stories-1/category/Ireland monthly 0.5 https://cpamparents.org/family-stories-1/category/Hybrid+Lesion monthly 0.5 https://cpamparents.org/family-stories-1/category/NICU monthly 0.5 https://cpamparents.org/family-stories-1/category/Asymptomatic monthly 0.5 https://cpamparents.org/family-stories-1/category/Symptomatic monthly 0.5 https://cpamparents.org/family-stories-1/category/Bronchial+Atresia monthly 0.5 https://cpamparents.org/family-stories-1/category/Surgery+after+1+year+old monthly 0.5 https://cpamparents.org/family-stories-1/tag/Stanford+Children%27s+Hospital monthly 0.5 https://cpamparents.org/family-stories-1/tag/Macrocystic monthly 0.5 https://cpamparents.org/family-stories-1/tag/section-to-resection monthly 0.5 https://cpamparents.org/family-stories-1/tag/max+CVR+%3E+1.5 monthly 0.5 https://cpamparents.org/family-stories-1/tag/NICU+%3E+5+days monthly 0.5 https://cpamparents.org/family-stories-1/tag/Shunt+procedure monthly 0.5 https://cpamparents.org/family-stories-1/tag/prenatal+steroids monthly 0.5 https://cpamparents.org/family-stories-1/tag/Boston+Children%27s+hospital monthly 0.5 https://cpamparents.org/family-stories-1/tag/intubated monthly 0.5 https://cpamparents.org/family-stories-1/tag/extralobar+BPS monthly 0.5 https://cpamparents.org/family-stories-1/tag/Oregon+Health+%26+Science+University+Hospital monthly 0.5 https://cpamparents.org/family-stories-1/tag/CHOP monthly 0.5 https://cpamparents.org/family-stories-1/tag/thoracotomy monthly 0.5 https://cpamparents.org/family-stories-1/tag/Surgery+%3C+3+months+old monthly 0.5 https://cpamparents.org/family-stories-1/tag/Johns+Hopkins monthly 0.5 https://cpamparents.org/blog daily 0.75 2026-04-20 https://cpamparents.org/blog/why-did-this-happen-understanding-how-congenital-lung-malformations-might-develop monthly 0.5 2026-04-20 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/1776711261522-YDY44JP236FLTACQF3XG/Untitled-54.png Blog - Why did this happen? Understanding how Congenital Lung Malformations develop - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/7ea2c7fc-74a8-4ef9-b9a5-026382a27b2d/lung-stages.png Blog - Why did this happen? Understanding how Congenital Lung Malformations develop - Make it stand out Stages of lung development | Credit: CPAM Parents https://cpamparents.org/blog/what-do-we-actually-know-about-lung-malformations monthly 0.5 2026-04-20 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/906685e3-0581-42ca-be8b-dc311758d82a/Untitled-52.png Blog - What do we actually know about lung malformations? Q&A with Dr Shaun Kunisaki - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/0310266e-1aa8-4c1f-bda3-805e3f10f0d4/Untitled-83.png Blog - What do we actually know about lung malformations? Q&A with Dr Shaun Kunisaki Dr Shaun M. Kunisaki, MD, MSc, is Professor of Surgery at the Johns Hopkins School of Medicine and Associate Chief of Strategy and Integration in the Division of General Pediatric Surgery at Johns Hopkins Children’s Center, where he directs the Fetal Program in General Pediatric Surgery. In addition, he serves as Director of Pediatric Esophageal Surgery at Johns Hopkins Children’s Center. https://cpamparents.org/blog/participate-in-a-clm-research-study monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/665d41d0-7dab-4564-a365-13184d1bb668/Untitled-46.png Blog - Participate in a CLM Research Study! - A study led by Dr Marisa Schwab (Stanford University) is exploring parents’ experience of their child’s lung malformation diagnosis and care. The study says: “Congenital lung malformations (CLMs) are rare development anomalies of the lung occurring in approximately one in 2500 live births. There is difficulty in predicting the severity of disease after birth. Counseling parents who have received a prenatal diagnosis of CLM thus involves a large degree of uncertainty about the experience after birth. The objective of this research project is to analyze the attitudes of parents with children diagnosed with a congenital lung malformation, specifically related to their experience with prenatal counseling and postnatal decision-making.” For more information or to participate please click here. https://cpamparents.org/blog/welcoming-dr-shaun-kunisaki-as-a-medical-advisor monthly 0.5 2026-03-19 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/0310266e-1aa8-4c1f-bda3-805e3f10f0d4/Untitled-83.png Blog - Welcoming Dr Shaun Kunisaki as a Medical Advisor - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://cpamparents.org/blog/myth-4 monthly 0.5 2026-03-19 https://cpamparents.org/blog/january-updates monthly 0.5 2026-02-11 https://cpamparents.org/blog/myth-3-most-clm-babies-cant-breathe-at-birth monthly 0.5 2026-03-07 https://cpamparents.org/blog/myth-2-clms-are-getting-more-common monthly 0.5 2026-03-07 https://cpamparents.org/blog/myth-i-did-something-to-cause-this monthly 0.5 2026-03-07 https://cpamparents.org/blog/january-is-myths-vs-facts-month monthly 0.5 2026-03-07 https://cpamparents.org/blog/were-here-welcome-to-cpam-parents monthly 0.5 2025-10-06 https://cpamparents.org/blog/category/Myths+vs+Facts monthly 0.5 https://cpamparents.org/blog/category/Education monthly 0.5 https://cpamparents.org/blog/category/News monthly 0.5 https://cpamparents.org/blog/category/Research monthly 0.5 https://cpamparents.org/blog/category/Q%26A monthly 0.5 https://cpamparents.org/education-posts daily 0.75 2026-04-20 https://cpamparents.org/education-posts/cba-parent-guide monthly 0.5 2026-04-20 https://cpamparents.org/education-posts/cle-parent-guide monthly 0.5 2026-04-20 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/11349c96-1652-4182-a545-afaa12a70a37/CLE2.png Education-posts - Congenital Lobar Emphysema (CLE or CLO) Parent Guide - Make it stand out A sketch of CLE affecting the upper left lobe https://cpamparents.org/education-posts/bps-parent-guide monthly 0.5 2026-04-20 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/ad0d97c0-0326-44b3-9346-de22550b4a78/bps2.png Education-posts - Bronchopulmonary Sequestration (BPS) Parent Guide - Make it stand out A sketch of an intralobar BPS lesion in the lower left lobe https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/7141e504-9c07-4fd2-a9f1-253fb31499d1/extralobar-bps.png Education-posts - Bronchopulmonary Sequestration (BPS) Parent Guide - Make it stand out A sketch of an extralobar BPS lying off the left lower lobe https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/15835a3c-a18b-4a6b-99ee-bd0db960ba69/intralobar-bps-medscape.jpg Education-posts - Bronchopulmonary Sequestration (BPS) Parent Guide - Make it stand out An intralobar BPS lesion viewed on an ultrasound. The lesion appears brighter than the surrounding healthy lung tissue. Source: Medscape article https://cpamparents.org/education-posts/cpam-parent-guide monthly 0.5 2026-04-20 https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/855ae0f2-ef98-4aab-8b22-1b1fd155654b/CPAM3.png Education-posts - Congenital Pulmonary Airway Malformation (CPAM) Parent Guide - Make it stand out A sketch of the lungs with a CPAM mass (shaded) in the lower left lobe. https://images.squarespace-cdn.com/content/v1/684dac3d4040680f17457ba0/4918dc63-1b69-49a4-bcb1-059c7585904b/Jordan+2016.jpg Education-posts - Congenital Pulmonary Airway Malformation (CPAM) Parent Guide - Make it stand out A CPAM lesion viewed on an ultrasound. The lesion appears brighter than the surrounding healthy lung tissue. 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